We were referred to the developmental pediatrician in January. Almost 11 months later...we had our appointment today. John saw the neurologist there. The appointment took almost two hours. The doctor asked me questions from his birth to eating habits to asking questions about if I could see a difference between my typical child vs. my ASD child. Some of the questions and comments I thought rather rude. I understand their research and trying to find out more about Autism but it's almost if they are trying to find something to "blame" for his Autism.
Otherwise, I think we had a good visit. The doctor said John is in the moderate range for Autism and either will maintain or improve. The doctor we saw back in June at Nemours was concerned John may be having absence seizures and would need an EEG. The doctor was not concerned and said an EEG was not necessary. They gave us some bloodwork orders to be done for John to check for Fragile X syndrome and other possible disorders. This will let them and the geneticist we see in December know if the type of Autism John has is environmental or genetic. Whichever is the case, we love him the way he is and he is fearfully and wonderfully made! Our creator does not make mistakes!
The next step is that the CARD center and CMS are going to help us to get ABA therapy which John's insurance originally denied :( We are doing everything we can to make sure he is getting everything he needs.
